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*** Great Strides 2010About us - - - |
History
Cystic fibrosis is a fatal genetic disease. It is considered a “rare” or “orphan” disease due to its infrequent occurrence in populations where it has been identified. It is estimated there are about 1,200 persons suffering from the disease in Quebec and 3,600 in Canada. Although cystic fibrosis sufferers receive medical care through the Canadian and Quebec public health care systems, government investment in high level research on rare diseases is insufficient. For those afflicted and their loved ones, research is nothing short of a question of life and death.
In 1981, parents of children suffering from cystic fibrosis decided to shake things up and founded the Association québécoise de la fibrose kystique (AQFK). Their ultimate hope was and remains that medical research will lead to victory over the disease. Over the years, AQFK has developed a broad network of volunteers and partners and sound expertise in fundraising and public relations.
It is presently comprised of 11 local volunteer organizations (known as local sections) covering most of Quebec. To ensure management and coordination of fund raising activities and development of public awareness, AQFK counts on its 13 permanent employees in Montreal and Quebec City. CCFF and ACFCQ
A story of friendship and partnership
The Association québécoise de la fibrose kystique invites you to visit the internet sites of the Canadian Cystic Fibrosis Foundation and the Adult Cystic Fibrosis Committee of Quebec which contain much valuable information and many useful links.
Canadian Cystic Fibrosis Foundation: http://www.fibrosekystique.ca/
Adult Cystic Fibrosis Committee of Quebec: http://www.cpafk.qc.ca/
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